The foundation
mission
The mission of the Sanfilippo Foundation Switzerland is to raise funds related to Sanfilippo disease to
1
Fund research and track therapeutic advancements
2
Aid children affected by the disease and provide support to their families
3
Communicate and raise awareness about the challenges associated with rare diseases.
values
Commitment
We are determined to fulfil our mission using all available means.
We are persevering because medical research is an intricate and complex process
Synergy
We foster the development of scientific expertise in Sanfilippo disease.
We strive for utmost efficiency in our operations and support.
Solidarity
We listen to the needs of children and their families with empathy and compassion.
We collaborate within a supportive community of children, caregivers, doctors, and researchers.
Transparency
We are transparent about the sources and allocation of our funds.
We regularly communicate about our organization and its activities.
In August 2008, we discovered that our little daughter Charlotte, then 4 years old, was suffering from an incurable and devastating orphan disease, Sanfilippo disease. We also realized that this genetic disease was not limited to our daughter alone.
Frédéric Morel, Chairman and Founder
Organisation
Dre Danielle BERTOLA REYMOND
Me Arnaud CYWIE
Anaïs DI NARDO
Family representative
Corinne FERY-VON ARX
Me Emmanuel LEIBENSON
Frédéric MOREL
Chairman and Founder
Natascha SIEGRIST
Dr Ron HOGG
Dr Nicolas LANTZ
Alexandra Spaethe
Director
Actualités
International Rare Disease Day
A l'occasion de la Journée internationale des maladies rares, plusieurs actions de visibilité ont été menées.
A global roadmap for therapies for Sanfilippo syndrome
A new global alliance for Sanfilippo Syndrome
A swing for children with reduced mobility at the HUG
See all our news
Annual reports
Partners
