Let’s take action against
Sanfilippo disease!
Established in November 2008, the Sanfilippo Foundation Switzerland endeavors to expedite the discovery of a treatment for Sanfilippo disease, offering children the hope of a cure.
research programmes supported
chf allocated to research
international scientific conferences organised
Sanfilippo disease
Sanfilippo disease is a rare degenerative disorder that results in irreversible brain damage, akin to childhood dementia, with the majority of affected children never reaching adulthood. There is currently no therapeutic treatment for this disease.
The Sanfilippo Foundation Switzerland supported the production of a documentary film entitled “Les enfants de Sanfilippo” to raise awareness about this disease. The film was screened on December 8, 2017, during the Telethon night.
Our actions
Raising awareness of rare diseases
The Foundation sets up campaigns and takes part in or organises events to raise public awareness.
Help for families
The Foundation works to provide practical help for children with MPS III and their families.
Scientific research
The Foundation is working to raise funds to speed up the discovery of a cure for the disease.
Take action with us
Make a donation
Your tax-deductible donation has the power to support research into Sanfilippo disease and improve the daily lives of affected children.
UBS GENÈVE IBAN CH56 0024 0240 6121 5300 N
CCP N° 10-185368-3
TWINT
Be active
- Organize a solidarity challenge
- Participate in an event
- Raise awareness within your network
- Become a partner
News
13 November 2025
4th world conference on Sanfilippo disease
On 13 and 14 November 2025, Geneva will host the world conference on Sanfilippo disease.
25 May 2025
Race for Gift 2025
On 25 May 2025, join us for the 10th edition of the Race for Gift. Let's run together to break new records and carry our message of hope high!
21 March 2024
An encouraging research programme led by Prof. Sizonenko and Dr Veraldi
28 February 2024
International Rare Disease Day
To commemorate the International Rare Disease Day, a number of visibility campaigns were organized.