Let’s take action against Sanfilippo disease!


research programmes supported

10 M

chf allocated to research


international scientific conferences organised

Sanfilippo disease

Sanfilippo disease is a rare degenerative disorder that results in irreversible brain damage, akin to childhood dementia, with the majority of affected children never reaching adulthood. There is currently no therapeutic treatment for this disease.

The Sanfilippo Foundation Switzerland supported the production of a documentary film entitled “Les enfants de Sanfilippo” to raise awareness about this disease. The film was screened on December 8, 2017, during the Telethon night.





World Sanfilippo Day

Held annually on November 16th, World Sanfilippo Day aims to raise awareness of this rare disease.


Support for families

The Foundation offers practical assistance to children with MPS III and their families.


Throughout the year, the Foundation participates in or hosts various events to raise funds.

Raising awareness of rare diseases

The Foundation strives to increase awareness and acknowledgment of the issues around rare diseases, which pose a significant global public health challenge.

See all our actions

Make a donation

Your tax-deductible donation has the power to support research into Sanfilippo disease and improve the daily lives of affected children.

UBS GENÈVE IBAN CH56 0024 0240 6121 5300 N
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Be active

  • Organize a solidarity challenge
  • Participate in an event
  • Raise awareness within your network
  • Become a partner