Let’s take action against Sanfilippo disease!
Established in November 2008, the Sanfilippo Foundation Switzerland endeavors to expedite the discovery of a treatment for Sanfilippo disease, offering children the hope of a cure.
research programmes supported
chf allocated to research
international scientific conferences organised
Sanfilippo disease
Sanfilippo disease is a rare degenerative disorder that results in irreversible brain damage, akin to childhood dementia, with the majority of affected children never reaching adulthood. There is currently no therapeutic treatment for this disease.
The Sanfilippo Foundation Switzerland supported the production of a documentary film entitled “Les enfants de Sanfilippo” to raise awareness about this disease. The film was screened on December 8, 2017, during the Telethon night.
Nos actions
World Sanfilippo Day
Held annually on November 16th, World Sanfilippo Day aims to raise awareness of this rare disease.
Support for families
The Foundation offers practical assistance to children with MPS III and their families.
Events
Throughout the year, the Foundation participates in or hosts various events to raise funds.
Raising awareness of rare diseases
The Foundation strives to increase awareness and acknowledgment of the issues around rare diseases, which pose a significant global public health challenge.
See all our actions
Take action with us
Make a donation
Your tax-deductible donation has the power to support research into Sanfilippo disease and improve the daily lives of affected children.
UBS GENÈVE IBAN CH56 0024 0240 6121 5300 N
CCP N° 10-185368-3
TWINT
Be active
- Organize a solidarity challenge
- Participate in an event
- Raise awareness within your network
- Become a partner