The foundation
mission
The mission of the Sanfilippo Foundation Switzerland is to raise funds related to Sanfilippo disease to
1
Fund research and track therapeutic advancements
2
Aid children affected by the disease and provide support to their families
3
Communicate and raise awareness about the challenges associated with rare diseases.
values
Commitment
We are determined to fulfil our mission using all available means.
We are persevering because medical research is an intricate and complex process
Synergy
We foster the development of scientific expertise in Sanfilippo disease.
We strive for utmost efficiency in our operations and support.
Solidarity
We listen to the needs of children and their families with empathy and compassion.
We collaborate within a supportive community of children, caregivers, doctors, and researchers.
Transparency
We are transparent about the sources and allocation of our funds.
We regularly communicate about our organization and its activities.
In August 2008, we discovered that our little daughter Charlotte, then 4 years old, was suffering from an incurable and devastating orphan disease, Sanfilippo disease. We also realized that this genetic disease was not limited to our daughter alone.
Frédéric Morel, Chairman and Founder
Organisation
The Foundation Board
Frédéric Morel
Chairman and Founder
Dre Danielle Bertola Reymond
Member
Isabelle Costes
Member
Me Arnaud Cywie
Member
Corinne Féry-von Arx
Member
Me Emmanuel Leibenson
Member
Anaïs di Nardo
Member
The Scientific Committee
Dr Nicolas Lantz
Director of the Scientific Committee
Dr Ron Hogg
Foundation office
Alexandra Spaethe
Director of the Sanfilippo Foundation Switzerland
News
13 November 2025
4th world conference on Sanfilippo disease
On 13 and 14 November 2025, Geneva will host the world conference on Sanfilippo disease.
25 May 2025
Race for Gift 2025
On 25 May 2025, join us for the 10th edition of the Race for Gift. Let's run together to break new records and carry our message of hope high!
02 June 2024
Race for Gift 2024
Pour la huitième année, la Fondation participe à la course solidaire Race For Gift qui aura lieu le 2 juin 2024 à Genève. Cette année, les fonds récoltés seront alloués au soutien aux familles d’enfants Sanfilippo.
21 March 2024
An encouraging research programme led by Prof. Sizonenko and Dr Veraldi
The aim of the project is to evaluate the effect of treatment with a heparanase-inhibiting polysaccharide on the MPS III A (Sanfilippo disease) mouse model. This approach, combined with encapsulating the treatment in lipid nanoparticles, […]
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