Our actions
We aim to offer practical assistance to families with children affected by MPS III and are committed to continuing our efforts in advancing research into mucopolysaccharidoses (MPS) for which there is currently no cure.
SUPPORT FOR FAMILIES
The Foundation endeavors to provide practical support for children with MPS III and their families through:
- Initiatives to facilitate the education and integration of children with mucopolysaccharidosis into educational environments
- Comprehensive care for affected children throughout all stages of their lives
- Assistance and support for families during and after their child’s illness
rare diseases
identified worldwide
affect
children
have a
genetic origin
people affected
worldwide
Raising awareness
of rare
diseases
Campaigns
The Foundation is running an active campaign to raise awareness of rare diseases, and in particular Sanfilippo disease.
A rare disease is defined as a condition that affects fewer than one person in 2,000 and requires special combined efforts to treat. There are over 8,000 listed rare diseases. Genetic in origin in 80% of cases, the other causes are infectious, auto-immune, degenerative or tumoral. They are usually chronic, disabling and can be life-threatening. Most cases appear at an early age, while others remain hidden for many years.
Events
The Foundation takes part in or organises a number of events throughout the year to raise funds for research projects.
Événements
Article published on : 27 November 2025
Order your charity greeting cards
Send a card, hang a star… and brighten a life.
Article published on : 13 March 2013
Production of a children's book ‘Noé et Noa’
25 May 2025
Race for Gift 2025
Join us for the 10th edition of the Race for Gift. Let's run together to break new records and carry our message of hope high!
02 June 2024
Race for Gift 2024
Pour la huitième année, la Fondation participe à la course solidaire Race For Gift qui aura lieu le 2 juin 2024 à Genève. Cette année, les fonds récoltés seront alloués au soutien aux familles d’enfants Sanfilippo.