Join us for the 10th edition of the Race for Gift. Let’s run together to break new records and carry our message of hope high!
News
News
An encouraging research programme led by Prof. Sizonenko and Dr Veraldi
The aim of the project is to evaluate the effect of treatment with a heparanase-inhibiting polysaccharide on the MPS III A (Sanfilippo disease) mouse model. This approach, combined with encapsulating the treatment in lipid nanoparticles, […]
International Rare Disease Day
To commemorate the International Rare Disease Day, a number of visibility campaigns were organized.
A new global alliance for Sanfilippo Syndrome
We are pleased to announce the establishment of the International Sanfilippo Syndrome Alliance (ISSA), a global collaboration of patient organizations dedicated to providing timely information to individuals with Sanfilippo syndrome and their families. The founding […]
An innovative and promising research program with the Swiss Data Science Center
This project was initiated in June 2023, pioneering the latest advancements in Research & Development. spearheaded by the Swiss Data Science Center, a collaborative effort between EPFL and ETH Zürich. It harnesses artificial intelligence and […]
A global roadmap for therapies for Sanfilippo syndrome
The Foundation played a key role in shaping the global roadmap for therapies for Sanfilippo syndrome. Access the roadmap through the provided link below. Versions are available in English, German, Spanish, and Portuguese: https://www.sanfilippo.org.au/research/global-research-roadmap
3rd International Conference
The 3rd International Conference organised by the Sanfilippo Foundation Switzerland was held on 12 and 13 November 2020 by videoconference.
2019 poster campaign
On February 13, 2019, a poster campaign on Geneva public transport for rare diseases was launched.
New poster in Manor and Nations car parks
Production of a children’s book ‘Noé et Noa’
To commemorate its fifth anniversary, the Sanfilippo Foundation Switzerland has created the book “Noé et Noa” with the goal of raising awareness among children aged 7-11 in Geneva primary schools about issues such as difference, […]