4th International Sanfilippo Conference

13–14 November 2025 – Geneva, Intercity Hotel

Fondation Sanfilippo Suisse is proud to announce the 4th International Sanfilippo Conference.
This major event will bring together researchers, clinicians, families, caregivers, and associations from around the world to share the latest scientific advances, explore innovative therapies, and shape future perspectives.

A high-level scientific program

Over 150 participants from more than 15 countries will gather to discuss key topics, including:

• Gene and enzyme replacement therapies
• Symptoms and natural history of the disease
• Innovative approaches and drug repurposing
• Biomarkers, animal models, and related lysosomal diseases

Plenary sessions and roundtable discussions will foster dialogue between science, medicine, and families—strengthening collaboration to accelerate research and access to new treatments.

A dedicated program for families and children

A special program will be offered for children and young adults affected by Sanfilippo syndrome or related diseases, supervised by professional educators.
This unique initiative enables parents to fully attend the conference while providing children with adapted activities that encourage socialization, friendship, and well-being.

A meeting place for hope and solidarity

Beyond the scientific sessions, the conference is a moment of connection and support, where families, researchers, and healthcare professionals can exchange in a caring environment.
A gala dinner and convivial gatherings will further strengthen bonds essential to advancing research and family support.

ℹ️ Practical Information
📍 Venue: Intercity Hotel, Geneva
📅 Dates: 13–14 November 2025
👥 Expected participants: researchers, physicians, families, associations, partners
👉 For further information or to support the conference:
Contact: Alexandra Spaethe
alexandra.spaethe@fondation-sanfilippo.ch